CDC’s Core Data Use Agreement Initiative

Purpose

CDC's Core Data Use Agreement (DUA) initiative focuses on enhancing data use and sharing agreements with public health jurisdictions across states, tribes, localities, and territories. On December 1, 2023, CDC adopted a new approach, introducing a "Core DUA" that unifies and enhances national data exchange. Following recommendations from the Advisory Committee to the Director (ACD) Data and Surveillance Workgroup, CDC is implementing a single agreement formalizing agency-to-agency data-sharing relationships.

Handshake

Core Agreement Components

  • Common Provisions: Terms applying across all core data sources, including confidentiality, security, data maintenance, routine uses, and reporting. These aim to provide clarity and uniformity regarding CDC's data practices across all information received from public health jurisdictions.
  • Data-Specific Addenda: Details unique to individual data sources, such as data standards or privacy requirements, offering flexibility for jurisdictions with legal restrictions.

Benefits of Core Agreement

  • Strengthens data sharing for routine and response purposes.
  • Increases trust and transparency in data exchange with health departments.
  • Supports future technological improvements.
  • Maintains necessary jurisdictional flexibility.

Impact

1) Reduces burden on health departments with a unified agreement.

2) Enhances partnership engagement and collaboration.

3) Establishes governance and accountability through a single point of contact.

CDC's Pathway to Core DUA

  1. Communication with Partners: Regular updates with jurisdictional and national partners.
  2. Negotiate and Sign Terms: Begin to negotiate Common Provisions and Addenda, starting with jurisdictions who currently send Core Data to CDC, with a goal of 15% of jurisdictions signing the Common Provisions by December 2024.
  3. Transition Existing DUAs into Addenda: Shift existing DUAs for Core Data Sources into Addenda, in order to streamline future negotiations and updates to DUAs, starting with jurisdictions who currently have a DUA for a Core Data source.
  4. Evaluate Success: Assess progress and opportunities for improvement.
  5. Ongoing Renegotiation: Evaluate need to add additional data sources as Addenda as needed for data sources beyond the core data. Iterate to meet the needs of all partners.
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Content Source:
Office of Public Health Data, Surveillance, and Technology (OPHDST)