SUID and SDY Case Registry Sites

Purpose

  • CDC's Division of Reproductive Health (DRH) supports monitoring programs in 32 sites as part of the Sudden Unexpected Infant Death (SUID) and Sudden Death in the Young (SDY) Case Registry.
  • Ten participating sites were also funded to implement enhanced community-based SUID prevention activities.

Background

CDC's Division of Reproductive Health supports monitoring programs in 32 sites as part of the SUID and SDY Case Registry. The Case Registry covers about 2 in 5 SUID in the United States. It builds on child death review programs and uses the National Center for Fatality Review and Prevention's Case Reporting System.

The SUID and SDY Case Registry brings together information about the circumstances associated with SUID and SDY. The SUID component includes data on infants up to age 12 months, including health information about investigations into these deaths. CDC and the National Institutes of Health collaborate on SDY monitoring. The SDY component expands work of the Case Registry in 12 sites to also include data on children and adolescents. It includes additional data and information about enhanced investigations into SUID and SDY.

Ten participating sites were also funded to implement enhanced community-based SUID prevention activities. These sites use SUID and SDY Case Registry data and evidence-based recommendations from the American Academy of Pediatrics.

Current SUID and SDY Case Registry Sites

Map showing CDC support for SUID and SDY monitoring and enhanced prevention
CDC support for SUID and SDY monitoring and enhanced prevention

SUID Only

Participating sites include Alaska; Arizona; Sacramento County, California; Connecticut; Dekalb and Fulton Counties, Georgia; Canyon County, Idaho; Cook County, Illinois; Kansas; Kentucky; Louisiana; Maryland; New Jersey; select counties in Pennsylvania; Rhode Island; South Dakota; Tennessee; Harris County, Texas; Washington; Vermont; and Wisconsin.

SUID and SDY

Participating sites include San Francisco County, California; Delaware; Indiana; select counties in Michigan; Minnesota; Nevada; New Hampshire; Hamilton County, Ohio; Philadelphia County, Pennsylvania; select counties in South Carolina; Utah; and select counties in Virgina.

Enhanced Community-Based SUID Prevention

Participating sites include Colorado; Dekalb and Fulton Counties, Georgia; Cook County, Illinois; Indiana; Louisiana; Michigan; Minnesota; Nevada; Tennessee; and Harris County, Texas.