What to know
Read these personal stories about sickle cell disease and sickle cell trait.
Personal stories
Read Aaron's story and experience living with sickle cell disease.
Read Alissia's story about her experience with sickle cell disease.
Read Blaze's story about his experience with sickle cell disease.
Read Courtney's story about her experience with sickle cell disease.
Read Dr. Alvarez's story about her experience studying sickle cell trait.
Read Fatimah's story about her experience with sickle cell disease.
Read Geno Atkins' story about his experience with sickle cell trait.
Read the Green family's story and AJ's experience with sickle cell disease.
Read Harry's story about his experience with sickle cell disease.
Read the Johnson family's story about their experience with sickle cell trait.
Read Joshua's story about his experience with sickle cell disease.
Read Lametra's story about her family's experience with sickle cell disease.
Read Lance's story about his experience living with sickle cell disease.
Read Mikeia's story about her experience living with sickle cell disease.
Read Mimi's story about her experience living with sickle cell disease.
Read Nilda's story about her experience with sickle cell anemia.
Read Phillip's story about his experience living with sickle cell disease.
Read Rae's story about her son's experience with sickle cell disease.
Read Shantá and her family's story about their experiences with sickle cell disease.
Read Tasha's story about her experience living with sickle cell disease.
Read Vera's story about her experience raising her son, Josh, who lives with sickle cell anemia.
Content Source
National Center on Birth Defects and Developmental Disabilities (NCBDDD)
About This Page
Published: May 15, 2024
Updated: February 21, 2025
This page was last updated on this date. Updates may include minor edits, image changes, or other modifications to page content.
Reviewed: August 7, 2026
The information on this page was last reviewed by subject matter experts to ensure accuracy.