What to know
The National Center on Birth Defects and Developmental Disabilities' extramural program funding (based on Fiscal Year 2023).
Activities and funding
Improving Timely Documentation, Reporting, and Analysis of Diagnostic and Intervention Data through Optimization of EHDI Surveillance Practices and Information Systems
North Carolina Department of Health and Human Services (DD20-2006, 000081)
$156,000
Birth Defects Study To Evaluate Pregnancy exposureS (BD-STEPS) II
University of North Carolina, Chapel Hill (DD18-001, 001231)
No cost extension until 8/31/24
Research Approaches to Improve the Care and Outcomes of People Living with Spina Bifida
Duke University (DD19-001, 001278- Comp B)
$80,000
Research Approaches to Improve the Care and Outcomes of People Living with Spina Bifida
Duke University (DD19-001, 001276- Comp C)
$25,000
Surveillance of Congenital Heart Defects Among Children, Adolescents, and Adults
Duke University (DD19-1902, 000054)
$399,998
The Muscular Dystrophy Surveillance, Tracking and Research Network
Research Triangle Institute (DD19-002, 001255 – Comp A)
$415,000
The Muscular Dystrophy Surveillance, Tracking and Research Network
Research Triangle Institute (DD19-002, 001253 – Comp C)
$79,986
The Muscular Dystrophy Surveillance, Tracking and Research Network
Research Triangle Institute (DD19-002, 001254 – Comp D)
$300,000
Small Business Innovation Research Grant
Health Outcomes, Inc. (SBIR19-272, 001232)
No cost extension until 9/29/23
Sickle Cell Data Collection Program
North Carolina Department of Health and Human Services (DD20-2003, 000015)
Project ended 9/29/23
Study to Explore Early Development (SEED) Follow up Studies
University of North Carolina at Chapel Hill, (DD21-001, 001293)
$601,381
Advancing Population-Based Surveillance of Birth Defects
North Carolina Department of Health and Human Services (DD21-2101, 000100)
$331,000
Birth Defects Study To Evaluate Pregnancy exposureS (BD-STEPS)
University of North Carolina at Chapel Hill (DD23-001, 001308)
$600,000
Sickle Cell Data Collection Program
North Carolina Department of Health of Health and Human Services (DD-23-0002, 000032)
$476,611
Enhancing partnerships to address birth defects, infant disorders and related conditions, and the health of pregnant and postpartum people
University of North Carolina at Chapel Hill (DD-23-0004, 000038)
$798,776