HIV Data Guidelines and Resources

Revised Surveillance Case Definition for HIV Infection — United States, 2014

Revises and combines the surveillance case definitions for HIV into a single case definition for persons of all ages (i.e., adults and adolescents aged ≥13 years and children aged <13 years). The revisions were made to address multiple issues, the most important of which was the need to adapt to recent changes in diagnostic criteria.

Status: Current

Data security and confidentiality guidelines for HIV, viral hepatitis, sexually transmitted disease, and tuberculosis programs: Standards to facilitate sharing and use of surveillance data for public health action (2011)

Recommends standards for all NCHHSTP programs that, when adopted, will facilitate the secure collection, storage, and use of data while maintaining confidentiality.

Status: Current

U.S. Department of Health and Human Services, Implementation Guidance on Data Collection Standards for Race, Ethnicity, Sex, Primary Language, and Disability Status (2011)

Provides a set of uniform data collection standards for inclusion in surveys conducted or sponsored by HHS as required by Section 4302 of the Affordable Care Act.

Status: Current

HIPAA privacy rule and public health: Guidance from CDC and the U.S. Department of Health and Human Services (2003)

The purpose of this report is to help public health agencies and others understand and interpret their responsibilities under the Privacy Rule. Elsewhere, comprehensive DHHS guidance is available from the HIPAA Office for Civil Rights.

Status: Current

Integrated Guidance for Developing Epidemiologic Profiles (2022)

Provides one set of guidance to help profile writers produce integrated epidemiologic profiles and advise them concerning how to interpret epidemiologic data in ways that are consistent and useful in meeting the planning and evaluation needs of both HIV prevention and care programs.

Status: Current