Fragile X Syndrome Articles

Key findings

Key Findings: Preventive Care Services and Health Behaviors in Children with Fragile X Syndrome

Researchers from the CDC and other organizations present data on preventive services received by children and young adults with FXS. This research can help clinicians identify preventive care services that their patients with FXS may need.

Key Findings: Advancing Treatment and Care for Fragile X Syndrome

Fragile X-associated disorders (FXD) are among the most common inherited causes of intellectual disability or problems with learning, thinking, reasoning, or remembering. A new supplement published in Pediatrics and funded by the CDC contains some of the latest research on FXD and will be a wide-ranging resource for healthcare professionals and researchers in their efforts to advance knowledge, treatment, and quality of life for those with FXD.

Key Findings: A Comparison of Family, Financial, and Employment Impacts of Fragile X Syndrome, Autism, and Intellectual Disability

Healthcare professionals should be aware of the family financial expense when addressing the complex needs of children living with FXS. Researchers at the National Center on Birth Defects and Developmental Disabilities at CDC, along with RTI International, recently published findings from a study on the financial expense of caring for a child living with FXS as compared with caring for a child with autism spectrum disorder (ASD), a child with intellectual disability (ID), or a child with both ASD and ID.