Impact of the National Amyotrophic Lateral Sclerosis Registry: Analysis of Registry-funded Research

Key points

Examines ALS research activities funded by the National ALS Registry, from 2012-2022.

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Affiliates

Lindsay Rechtman [1], Stephan Brenner [2], Marcienne Wright [2], Maggie Ritsick [1], Farhana Rahman [2], Moon Han [2], Jaime Raymond [2], Theodore Larson [2], D. Kevin Horton [2], Paul Mehta [2]

  1. McKing Consulting Corporation, Atlanta, Georgia, USA
  2. Centers for Disease Control and Prevention/Agency for Toxic Substances and Disease Registry, National ALS Registry (CDC/ATSDR), Atlanta, Georgia, USA

Journal

Annals of Clinical and Translational Neurology

Summary

This paper describes the analysis undertaken by the Agency for Toxic Substances and Disease Registry (ATSDR) to examine the impact of National ALS Registry funded ALS research activities. Since 2012, the National ALS Registry has funded 14 projects through extramural research grants. On average these funded projects produced 1-2 publications that were cited 114 times by other researchers. Analysis of the program found that Registry-funded research fills an essential gap in the overall ALS scientific community as it is difficult to prevent and treat a disease without a deeper understanding of its causes.

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Content Source:
Agency for Toxic Substances and Disease Registry