The National ALS Registry: a recruitment tool for research

Key points

Summarizes benefits of ALS Registry as recruitment tool

Affiliates

Angela M. Malek1, David E. Stickler1, Vinicius C. Antao2, and D. Kevin Horton2

  1. Department of Neurosciences, Medical University of South Carolina
  2. Agency for Toxic Substances and Disease Registry, Division of Toxicology and Human Health Science

Journal

Muscle and Nerve

Summary

This paper outlines the benefit of using the National ALS Registry as a recruiting tool for studies on PALS. Registry participants (n=2,232) were sent emails regarding a potential case-control study. 268 surveys were returned, of which, 96 returned an authorization to disclose protected health information. Concluding, the National ALS Registry is a useful tool for recruiting persons with ALS.

Link to Paper

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Content Source:
Agency for Toxic Substances and Disease Registry