At a glance
Affiliates
Paul Mehta1, Wendy Kaye2, Leah Bryan3, Theodore Larson1, Timothy Copeland1, Jennifer Wu1, Oleg Muravov1, Kevin Horton1
- Agency for Toxic Substances and Disease Registry, Division of Toxicology and Human Health Sciences
- McKing Consulting Corporation
- Carter Consulting, Inc.
Summary
This study estimates the national ALS prevalence for 2012-2013, using data from the National ALS Registry. During 2012 and 2013, the Registry identified 14,713 and 15,908 persons, respectively, who met the surveillance case definition of ALS. The estimated ALS prevalence rate was 4.7 cases per 100,000 U.S. population for 2012 and 5.0 per 100,000 for 2013. Data from the registry are being used to better describe the epidemiology of ALS in the US. Moreover, the Registry is helping to facilitate new, innovative research in the US.