CDC Grand Rounds: National Amyotrophic Lateral Sclerosis (ALS) Registry impact, challenges, and future directions

At a glance

A summation of the progress the National ALS Registry has achieved

Affiliates

Paul Mehta1, D. Kevin Horton1, Edward J. Kasarskis2, Ed Tessaro3, M. Shira Eisenberg4, Susan Laird5, John Iskander4

  1. Environmental Health and Surveillance Branch, Division of Toxicology and Human Health Sciences, Agency for Toxic Substances and Disease Registry, CDC
  2. Cynthia Shaw Crispen Chair, ALS Research, Department of Neurology
  3. A person living with ALS
  4. Office of the Associate Director for Science, CDC
  5. Office of the Associate Director for Communication Science, CDC

Journal

Morbidity and Mortality Weekly Report

Summary

This is a summation of the progress the National ALS Registry has achieved, including: updates on the Biorepository, the most recent prevalence estimates, and the success of recruiting patients for research using the Registry

Link to paper

Find the paper here!

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Content Source:
Agency for Toxic Substances and Disease Registry