National ALS Registry Testimonials

Clinicians/ALS Researchers

Using the National ALS Registry, clinicians and researchers review ALS data and connect with patients who qualify for clinical trials. Read more about the ways these professionals rely on the registry as part of their search for answers:

"We have discovered a correlation between organic pollutants and ALS. Two important grants we received this fall from the NIH & CDC allow us to further pinpoint the environmental risk factors of ALS. The National ALS Registry is an important partner in this research. Information collected in the registry can further our understanding of the link between the environment and ALS, with the goal of making ALS a preventable disease."
– Eva Feldman, MD, PhD, University of Michigan, ALS Researcher supported by the Registry

People Living with ALS

People living with ALS join the registry to help shine a light on the possible risk factors of this disease. They also participate in clinical trials for new treatments. See how patients are pursuing a cure through The National ALS Registry:

"It is important to me that [ALS] researchers finally have reliable incidence data, or the real number diagnosed each year, so possible disease clusters may be determined."
– Rob, a person with ALS

Family Members / Caregivers

People living with ALS and those who care for them play an essential role in the search for more information about this disease. Learn how families and caregivers are finding purpose through participation:

"The first step is finding the cause through the disease Registry. Research is the key because there is so much we don t know."

– Bill, a family member of a person with ALS