Emily's Story

Key points

Emily, a tuberculosis (TB) survivor, highlights her personal experiences with TB disease.

Headshot of Emily, a TB survivor

Emily's story

Emily's first symptom was a continuous cough that got especially bad in the middle of the night. She would wake up and cough for 30 minutes. It felt like she had eaten something hot and spicy like a chili pepper that made her cough. But it wouldn't go away.

During her first visit to the hospital the doctors told her she had the flu and she was sent home. After her symptoms continued to get worse over time, she went to a clinic and was prescribed an antibiotic. But it didn't help.

Emily began to have chills throughout the day and night. She was feeling more and more tired. One morning she woke up, got dressed, and was too tired to walk out the door. She knew something was very wrong.

Diagnosis

She went to the hospital again. The doctors performed many tests as they tried to figure out what was causing Emily's illness. She was losing lots of weight, not able to keep down food or water, and extremely tired. Finally, the doctors found a clue. They discovered fluid between her heart and lungs. They removed the fluid and tested it for TB. It was positive. Finally, Emily had a diagnosis of TB disease.

Emily's first reaction was fear. "I have some other family, friends – they died because of TB. The way I saw them get sick, I was like, God, please don't give me this. I don't like to be sick with TB," Emily recalls.

Treatment

The first few weeks of her treatment for TB disease were difficult. Things began to improve once doctors found the right regiment to treat her TB disease. With the right treatment, and a very supportive hospital staff, Emily began to get better. “If you work with doctors and your nurses, you will heal,” says Emily.

Emily's message

Since completing treatment, Emily has learned to drive and has a fulfilling job as a respiratory technician where she uses her story to connect with and help patients.

Emily explains, "I like it because I always like engaging with the patients. Some I can tell them, they will be like, 'Oh, I'm dying.' I'll say, 'You know what? You are not going to die.' I explain my story to them. They feel better. They say, 'Okay, thank you'".

If you are a TB patient, survivor, or family member in need of support, We Are TB is a community of TB survivors, people being treated for TB, and their family members who are committed to the common goal of eliminating TB.