Select State-based Activities and Funding in New York

Activities and funding

Improving Timely Documentation, Reporting, and Analysis of Diagnostic and Intervention Data through Optimization of EHDI Surveillance Practices and Information Systems Health
Health Research, Inc. (DD20-2006, 000060)
$30,380

Public Health Surveillance for the Prevention of Complications of Bleeding Disorders
American Thrombosis and Hemostasis Network (DD20-2004, 000020)
$4,171,000

Implementing Evidence-Based Health Promotion Programs for Children with Attention-Deficit/Hyperactivity Disorder (ADHD) or Tourette Syndrome (TS)
Tourette Syndrome Association, Inc. (DD19-1904, 000001)
Project ended 8/31/24

Evaluation of Health Promotion and Preventive Program for Blood Disorders
Cooley’s Anemia Foundation, Inc. (DD20-2002, 000005)
$145,500

Evaluation of Health Promotion and Preventive Program for Blood Disorders
National Bleeding Disorders Foundation (DD20-2002, 000006)
$550,000

Birth Defects Study To Evaluate Pregnancy exposureS (BD-STEPS) II
Health Research, Inc./New York State Department of Health (DD18-001, 001227)
No cost extension until 8/31/24

Surveillance of Congenital Heart Defects Among Children, Adolescents and Adults
New York State Department of Health (DD19-1902, 000056)
No cost extension until 9/29/24

Characterizing the Complications Associated with Therapeutic Blood Transfusions for Hemoglobinopathies
Joan & Sanford I. Weill Medical College of Cornell University (DD19-1903, 000001)
No cost extension until 9/29/25

The Muscular Dystrophy Surveillance, Tracking and Research Network
Health Research, Inc./New York State Department of Health (DD19-002, 001252- Comp A)
No cost extension until 8/31/25

The Muscular Dystrophy Surveillance, Tracking and Research Network
Health Research, Inc./New York State Department of Health (DD19-002, 001250- Comp C)
No cost extension until 8/31/25

Improving the Health of People with Mobility Limitations
Health Research, Inc. (DD21-2103, 000028)
$585,000

Birth Defects Study To Evaluate Pregnancy exposureS (BD-STEPS)
Health Research, Inc. (DD23-001, 001304)
$855,000

Surveillance of Congenital Heart Defects Among Children, Adolescents, and Adults
New York City, Health Research, Inc. (DD-24-0051, 000055)
$500,000

Surveillance of Muscular Dystrophies
Health Research, Inc. (DD-24-0064, 000051)
$450,000

Surveillance of Spina Bifida across the Lifespan
Health Research, Inc. (DD-24-0065, 000047)
$340,000

Health Promotion and Disease Prevention Research Centers -
University of Rochester (DP22-003, 006394)
$302,000

Health Promotion and Disease Prevention Research Centers
New York University School of Medicine (DP22-003, 006396)
$310,000

Increasing Public Awareness and Provider Education About Primary Immunodeficiency Disease
The Jeffrey Modell Foundation (CD-23-0057, 000057)
$3,000,000

Implementing Evidence-Based Health Promotion Programs for Children with Attention-Deficit/Hyperactivity Disorder (ADHD) or
Tourette Syndrome (TS) Tourette Association of America, Inc (DD-24-0055, 000004)
$1,100,000

Documenting outcomes associated with Persistent Tic Disorders (including Tourette Syndrome) in Children, Adolescents, and Young Adults through Surveillance
Tourette Association of America, Inc. (DD-24-0083, 000006)
$550,000

Epidemiology and Laboratory Capacity for Prevention and Control of Emerging Infectious Diseases (ELC)
New York City Department of Public Health (CK-24-0002, 000368)
$375,000

Epidemiology and Laboratory Capacity for Prevention and Control of Emerging Infectious Diseases (ELC)
New York State Department of Public Health (CK-24-0002, 000372)
$500,000