What to know
The National Center on Birth Defects and Developmental Disabilities’ extramural program funding (based on Fiscal Year 2023).
![Skyline of a city in New York](https://www.cdc.gov/ncbddd/aboutus/state-funding/images/new_york.jpg)
Activities and funding
Improving Timely Documentation, Reporting, and Analysis of Diagnostic and Intervention Data through Optimization of EHDI Surveillance Practices and Information Systems Health
Health Research, Inc. (DD20-2006, 000060)
$166,000
Public Health Surveillance for the Prevention of Complications of Bleeding Disorders
American Thrombosis and Hemostasis Network (DD20-2004, 000020)
$4,300,000
Implementing Evidence-Based Health Promotion Programs for Children with Attention-Deficit/Hyperactivity Disorder (ADHD) or Tourette Syndrome (TS)
Tourette Syndrome Association, Inc. (DD19-1904, 000001)
$1,099,752
Evaluation of Health Promotion and Preventive Program for Blood Disorders
Cooley’s Anemia Foundation, Inc. (DD20-2002, 000005)
$150,000
Evaluation of Health Promotion and Preventive Program for Blood Disorders
National Hemophilia Foundation (DD20-2002, 000006)
$500,000
Birth Defects Study To Evaluate Pregnancy exposureS (BD-STEPS) II
Health Research, Inc./New York State Department of Health (DD18-001, 001227)
No cost extension until 8/31/24
Surveillance of Congenital Heart Defects Among Children, Adolescents and Adults
New York State Department of Health (DD19-1902, 000056)
$480,000
Characterizing the Complications Associated with Therapeutic Blood Transfusions for Hemoglobinopathies
Joan & Sanford I. Weill Medical College of Cornell University (DD19-1903, 000001)
$250,000
The Muscular Dystrophy Surveillance, Tracking and Research Network
Health Research, Inc./New York State Department of Health (DD19-002, 001252- Comp A)
$415,000
The Muscular Dystrophy Surveillance, Tracking and Research Network
Health Research, Inc./New York State Department of Health (DD19-002, 001250- Comp C)
$80,000
Surveillance for Emerging Threats to Mothers and Babies
New York City, Health Research, Inc. (CK19-1904, 000516)
$326,424
Improving the Health of People with Mobility Limitations
Health Research, Inc. (DD21-2103, 000028)
$585,000
Birth Defects Study To Evaluate Pregnancy exposureS (BD-STEPS)
Health Research, Inc. (DD23-001, 001304)
$900,000
Pregnant People-Infant Linked Longitudinal Surveillance
University of Rochester DD-23-0003, 000017)
$397,050
Health Promotion and Disease Prevention Research Centers-
University of Rochester (DP22-003, 006394)
$302,000
Health Promotion and Disease Prevention Research Centers
New York University School of Medicine (DP22-003, 006396)
$310,000