What to know
The National Center on Birth Defects and Developmental Disabilities’ extramural program funding (based on Fiscal Year 2023).
Activities and funding
Improving Timely Documentation, Reporting, and Analysis of Diagnostic and Intervention Data through Optimization of EHDI Surveillance Practices and Information Systems Health
Health Research, Inc. (DD20-2006, 000060)
$166,000
Public Health Surveillance for the Prevention of Complications of Bleeding Disorders
American Thrombosis and Hemostasis Network (DD20-2004, 000020)
$4,300,000
Implementing Evidence-Based Health Promotion Programs for Children with Attention-Deficit/Hyperactivity Disorder (ADHD) or Tourette Syndrome (TS)
Tourette Syndrome Association, Inc. (DD19-1904, 000001)
$1,099,752
Evaluation of Health Promotion and Preventive Program for Blood Disorders
Cooley’s Anemia Foundation, Inc. (DD20-2002, 000005)
$150,000
Evaluation of Health Promotion and Preventive Program for Blood Disorders
National Hemophilia Foundation (DD20-2002, 000006)
$500,000
Birth Defects Study To Evaluate Pregnancy exposureS (BD-STEPS) II
Health Research, Inc./New York State Department of Health (DD18-001, 001227)
No cost extension until 8/31/24
Surveillance of Congenital Heart Defects Among Children, Adolescents and Adults
New York State Department of Health (DD19-1902, 000056)
$480,000
Characterizing the Complications Associated with Therapeutic Blood Transfusions for Hemoglobinopathies
Joan & Sanford I. Weill Medical College of Cornell University (DD19-1903, 000001)
$250,000
The Muscular Dystrophy Surveillance, Tracking and Research Network
Health Research, Inc./New York State Department of Health (DD19-002, 001252- Comp A)
$415,000
The Muscular Dystrophy Surveillance, Tracking and Research Network
Health Research, Inc./New York State Department of Health (DD19-002, 001250- Comp C)
$80,000
Surveillance for Emerging Threats to Mothers and Babies
New York City, Health Research, Inc. (CK19-1904, 000516)
$326,424
Improving the Health of People with Mobility Limitations
Health Research, Inc. (DD21-2103, 000028)
$585,000
Birth Defects Study To Evaluate Pregnancy exposureS (BD-STEPS)
Health Research, Inc. (DD23-001, 001304)
$900,000
Pregnant People-Infant Linked Longitudinal Surveillance
University of Rochester DD-23-0003, 000017)
$397,050
Health Promotion and Disease Prevention Research Centers-
University of Rochester (DP22-003, 006394)
$302,000
Health Promotion and Disease Prevention Research Centers
New York University School of Medicine (DP22-003, 006396)
$310,000