Improving health outcomes for patients with IBD (CDC-funded programs, 2023-2028)

Key points

  • CDC funded a cooperative agreement, Improving Health Outcomes for Patients with Inflammatory Bowel Disease (IBD), in the fall of 2023.
  • Two recipients were awarded funding, which is scheduled to continue until the fall of 2028.
  • Both recipients are in the early stages of research.

Overview

Cooperative agreement (2023)

The 2023 cooperative agreement Improving Health Outcomes for Patients with Inflammatory Bowel Disease (IBD) aims to study IBD and identify ways for patients and health care professionals to improve disease management, ultimately improving outcomes and reducing health disparities.

Recipients

Two recipients were awarded funding. Learn about their research goals below.

University of North Carolina: Research goals

The research goals for the University of North Carolina at Chapel Hill are to:

1. Develop a digital health intervention to improve IBD management and patient engagement. Test the intervention by comparing IBD outcomes of patients who used the intervention with patients who received usual care.

2. Observe patients receiving usual care to identify how social risk is linked to the progression and outcomes of IBD.

3. Address disparities in IBD care and raise awareness through education for both doctors and patients. Education programs aim to improve understanding of the disease and share the latest research and best practices.

Principal investigator

Michael Kappelman, MD, MPH

Crohn’s and Colitis Foundation: Research goals

The research goals for the Crohn's & Colitis Foundation are to:

1. Identify factors that influence IBD patients, with an emphasis on Black adults and adolescents. Specifics include health-related quality of life, access to health care, coping skills, early-life trauma, and stress management.

2. Determine factors influencing health literacy for adults or adolescents with IBD, and for adult caregivers of IBD patients. Research focuses particularly on factors influencing the Black populations.

3. Create awareness and education programs for people with IBD to get diagnosed and treated sooner, with an emphasis on Black patients.

a) Patient and caregiver education programs will focus on improving health literacy and disease self-management.

b) Health care professional education programs will focus on reducing delays in diagnosis, improving shared decision making, and empowering disease self-management. These programs will also provide knowledge and tools to navigate racial and cultural barriers, with an emphasis on the barriers that Black patients face.

Principal investigator

Laura Wingate

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Content Source:
National Center for Chronic Disease Prevention and Health Promotion