Programs & Tools:

IIS Privacy, Confidentiality, Security, and Legislation

HIPAA of 1996

Health Insurance Portability and Accountability Act (HIPAA)

• One Page Summary of the Law
  This one page document contains a concise summary of the key provisions in HIPAA (P.L. 104-191), enacted on August 21, 1996.
• Immunization Registries, HL7, and HIPAA
• Disclosure to Public Health Under the HIPAA Privacy Rule
  (Updated 12/16/02) (still valid as of 3/31/05)
  See also HIPAA Presentations (related to Privacy, Confidentiality, Security, & Legislation).
• Health Privacy Project
  Privacy and confidentiality information for the consumer.
• Massachusetts Health Data Consortium - Useful HIPAA resources.

HIPAA Resources Outside of NIP

• Office for Civil Rights
• Health Information Privacy Office
• CDC/DHHS Guidance, HIPAA Privacy Rule and Public Health
  (MMWR, April 11, 2003)
• North American Association of Central Cancer Registries (NAACCR) (exit)
  The NAACCR has developed materials to assist central cancer registries and cancer reporting entities in assuring compliance with HIPAA privacy regulations. These include a letter from NAACCR legal counsel and an in-depth, academic interpretation of the impact of the regulation on cancer incidence reporting to central cancer registries. Since immunization information systems (IIS) must address many of the same privacy issues as cancer registries, these documents may be an important resource for IIS projects.

NIP Privacy and Confidentiality Resources

• Survey of State Immunization Registry Legislation
• Related Presentations, Publications and Reports
• Community Immunization Registry Manual:
  • Confidentiality Chapter
  • Confidentiality Chapter Summary

*Accessibility Note: For text-only versions of these files for screen-reader device compatibility, contact NIPINFO@cdc.gov for immediate assistance.

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